If you have been visiting here on occasion, you might know my mom just had the majority of her esophagus removed. It was a major surgery, especially for a woman of her age, but God brought her through and she was well on her way to a full recovery.
After the surgery, the surgeon felt it best to put her in sub-acute rehab for awhile, mostly for physical therapy. During her stay, she very suddenly stopped eating. Even though she has a J-Tube in place for tube feedings, the idea was to get her eating and transition her off the tube and onto full meals, but it wasn’t looking good. She has not even been taking a teaspoon at each meal.
She never complained of pain; only that she had no appetite. I realized fairly quickly that the facility was not following the doctor’s requests to give her very small meals throughout the day, in fact, they were rarely bringing her a snack at all. When she was supposed to be eating a soft diet, they were giving her things like bagels.
On one particular occasion, her feeding tube fell out and she had to be taken to Yale to have it replaced. On her way back to the facility she asked to eat – a huge surprise to us, but upon arriving back at the facility, they realized that the fitting for her tube was not in place, so not only did she not get a tube feeding, they also never gave her anything to eat by mouth. Of course I didn’t know about this until the next day and I was not a happy camper.
These kinds of things have become regular occurrences over the last couple of weeks. The stress has been incredible and my body has not been cooperating. Over the last couple of days, I have had a real struggle to get off the couch.
I raised my concerns and my voice about this issue on several occasions, but to no avail. It’s always someone else’s fault.
So the facility called a meeting yesterday and told me my mom could come home – with the tube. UGH. Honestly, that was the last thing I expected, or planned for. All the while I’m thinking, “God, haven’t I done my time with my mom? Can’t you send her home without a tube? I’m so tired. There is just nothing left for me to give.”
Selfish I know. But you have no idea how tired I am.
Anyway, I asked her what she would like to eat if she could have anything at all. She wanted pizza. So I planned to bring her pizza today and this afternoon I called to remind her what I was bringing for dinner. She informed me that she asked them to take her lunch tray away because she was getting something better.
“Uh mom….I’m not coming until dinner.”
“That’s okay. I’m not hungry anyway.”
As I walked into her room holding the hot pie, she looked really excited. I think she even licked her lips a time or two, but I was still skeptical.
And then she very slowly ate TWO WHOLE PIECES!
And this grown woman almost cried…
Thank you Jesus!
I guess the food there just stinks.